Jennifer Worth, author of Call the Midwife – currently a hugely successful TV series – sadly died just before filming began in 2011.
Some seven years previously she had contacted me offering a feature about the severe eczema she had developed at the age of fifty five and her efforts to relieve it.
The first line was startling: Severe eczema doesn’t kill you; it just drives you insane.
Written in much the same style as her books the feature chronicles the development and relief of the eczema she experienced.
I developed eczema for the first time when I was fifty five. Within three short months two tiny patches of eczema on my legs had spread to cover my entire body. It is the itching that drives you mad. I would scratch the whole night long until I drew blood, then it would begin to hurt, but the pain was infinitely preferable to the itching.
Dermatologists could only offer steroids. These helped a little, but the itch came back worse than ever afterwards. I was in despair, until I happened to eat a Chinese meal, which gave me food poisoning and I did not eat for four days. During that time my eczema virtually cleared up. When I started eating again it came back. The cause was obvious – food allergy.
The dermatologists told me it was coincidence, as in their view there was no connection between food and eczema. But I was not convinced and searched every path for the offending foods – with no success. Let me say here that most people fail if they try to identify food allergies alone. It is too complex for the layman and you need an allergy specialist, a qualified nutritionist or at least a reputable book to follow.
I was fortunate in finding the right specialist, who guided me through a strict elimination diet. Once we had found the right diet, my skin cleared within three weeks. Then he led me through the challenge/reintroduction phase of the diet, which was very difficult and troubled by many pitfalls. After about six months, my skin was completely clear and I felt wonderful. Incidentally a side effect of an elimination diet is a surge of good health. Eliminating dairy products, gluten, yeast, sugars and chemical additives from your body can only be beneficial. We all eat the wrong things and suffer for it.
My specialist advised me to have a course of Enzyme Potentiated Desensitisation (EPD) because, he told me new allergies would develop. I have had EPD – see below – twice a year for nearly ten years and my skin remains perfect, for which I thank God every day of my life.
The charity Action Against Allergy asked me to write a book about my experiences detailing the elimination diet given me by my specialist. I was asked for this because there is so little information available on this subject. My book Eczema and Food Allergy was published in 1997 and featured in the Nursing Times, the Sunday Telegraph and the magazine Here’s Health. It sold out of two editions and last year they decided to republish online – see below.
This is a very controversial subject. Doctors, dieticians and even the National Eczema Society will state that eczema is not connected to food. But I have proved that it is.
In this article, I have deliberately refrained from giving any advice to eczema sufferers about diet. It would be rash and irresponsible for me to do so, because the subject is far too complex for a short article. But my book contains all the details necessary for a successful elimination diet and includes many addresses for specialist treatment. My heart goes out to anyone afflicted with severe eczema. I know the suffering involved and it is beyond description. If my experience can be of help to anyone, I am well pleased.
Many people have asked me what EPD is; how does it work, where can you get it, and what does it cost? It is a very subtle and complex medical process, and I give below a brief summary of what it is about.
Enzyme Potentiated Desensitisation is a form of immunotherapy developed by Dr. L. M. McEwen in the 1960s and now used worldwide. It has the potential to desensitise anyone to the allergens to which they are allergic. This includes foods, dust, animals, birds, grasses, pollens, moulds, and many chemicals. An ultra-low dose of allergen is used – approximately 1/1000 part of a routine skin-prick test – combined with the natural enzyme beta-glucuronidase which enhances, or potentiates the desensitisation process (thus we get the rather curious name). It is particularly effective for the treatment of eczema, and will work quickly for children – the younger the child the quicker it will work. It takes about 2-5 years to be effective for an adult.
EPD is only available on the NHS at the Royal Homeopathic Hospital (60 Great Ormond Street, London W1N 3HR). Dr Michael Jenkins, Consultant Allergist will see patients via a referral from their GP. EPD has a ‘Specials’ licence. This means it is accessible only to suitably accredited doctors to supply on a ‘named’ patient basis. The doctor must be a qualified MD trained in allergies, and who is specially trained to hold a licence to administer EPD.
There are about twenty such doctors in the country, and their names and addresses can be obtained from the British Society of Allergy and Environmental Medicine, PO Box No. 7, Knighton LD7 1WT Phone: 01547 550378; Web site: www.bsaenm.org.uk. This is a charity which will give you the address of your nearest medical practitioner of both EPD and Neutralisation. An adult course of EPD, lasting about five years, will cost around £2000, but far less for a child. This may seem a lot, but, believe me, EPD is worth a second mortgage.
In my book ‘Eczema and Food Allergy’ I devote two chapters to EPD, which gives far more detail than I can give here.
Eczema and Food Allergy is available in print from Merton Books www.mertonbooks.co.uk
Jennifer Worth, born 25 September 1935 died 31 May 2011, was a nurse, midwife and ward sister from 1954-1973.
Her book Call the Midwife about her years as a district midwife in the slums of London’s East End is published by Orion Books There is an interview with Jennifer talking to Danuta Kean about writing her books on that web page.
Two more books Shadows of the Workhouse and Farewell to the East End make up a trilogy. All three books have sold almost a million copies and stimulated a publishing subgenre of nostalgic true life stories.
You can watch a short video interview where she talks about her nursing career and working with the nuns in the East End of London.
Val Reynolds Brown, Editor